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Friday, October 1, 2010

Wendy has a line now

For several months,Wendy has been taking benzo-diazapam by mouth and for more than two months I have been giving her an injection of Medazolam, a benzo-diazopam derivative that acts as a sedative and tranquillizer, at bed time every night. Lately I have had to give her another injection when the bed-time dose wore off, usually between 11.30 pm and about 0100; occasionally she has to have a third dose around 0300 to 0400. As you can imagine this is pretty disruptive of her sleep and mine. When Louise Coulombe called yesterday afternoon (a very busy day of visits, we had half a dozen friends drop in briefly one at a time as well as the dietician, the technician from the power wheelchair supplier, and the therapist who fitted her for the chair) and I told her about Wendy's and my disrupted sleep. She said it was time for Wendy to have a subcutaneous line and continuous small doses of Medazolam, with the option of a larger bolus as necessary, for instance to settle her for her afternoon nap. Dejardins pharmacy, which is licenced to distribute narcotics and similar supplies, arrived at 1015 last night with the boxes of supplies, and this morning, just as I was finishing off dressing Wendy's peg tube, Jodi Gannon, our visiting nurse, arrived and set everything up. So Wendy has become even more bionic! She gets most of hr nourishment from the PEG Tube which I use four times daily to give her high-energy liquid and sundry medications; but she also has -and greatly enjoys - food by mouth. At breakfast time she has jellied orange juice, mashed banana and a cup of tea; at lunch she has a thawed-out mushroom or carrot soup a la David Last, laced with whipping cream, and another cup of tear. Her supper, midway between her 4 pm and her 8 pm tube feed, is one of Richard's ever-increasing range of gourmet dishes. I will provide a complete list in a future post because I haven't time for this today.

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