Sunday, May 30, 2010
Cutting for Stone (again)
Ottawa Race Weekend
Saturday, May 29, 2010
The Master Chef
Friday, May 28, 2010
Victoria Day and since
There's not much more to report: we've had various contacts with ALS helpers this week, and more suggestions about ways to make life easier for Wendy. The outcome of this will be more bits and pieces of equipment delivered early next week. We have also had some more useful suggestions about ways to take in fluid and food without risk of choking. It's all a matter of adjusting and readjusting so life can be made as comfortable and easy as possible. For example it's easier to swallow jelly without choking than to swallow a glass of orange juice.
Tuesday, May 25, 2010
Signs of the times
Sunday, May 23, 2010
Oddities of English
Saturday, May 22, 2010
Cutting for Stone
Blenders
Thursday, May 20, 2010
More advice on living with ALS
Wednesday, May 19, 2010
Anarchy abroad and at home
Monday, May 17, 2010
Wendy's story of the two baby pigs
Today's post on the blog is an excerpt of Wendy's memoir of her childhood. Her father had been gassed during one of the battles in France in the 1914-1918 world war, and his permanently damaged lungs made it difficult for him to work year round. In warm weather he worked outdoors, overseeing telephone linesmen setting up new phone lines across the South Island of New Zealand. Her memoirs contain several memorable anecdotes about her experience as the youngest of three children during the great depression of the early 1930s, with her brother John and her sister Rae. This is the story of the two pigs, Adolphus and Jemima.
Among the stray animals that Pop found while out in the country were two white piglets. He had sat in the truck eating his lunch when he heard a baby crying, a strange sound when he was miles from any house. He got up to look around but could see nothing, so he followed the noise to a dense bush and peering underneath it he saw two little white pigs snuffling and mewling in the grass. He reached in and picked one up because it certainly wasn't the wild boar variety and he wasn't afraid of a domestic pig. It didn't resist at all and he was wondering if he should just leave them there for the mother to return, but no domestic pig would be out in the country so far from any farm. The little fellow was obviously thirsty because it latched onto Pop's sleeve and started to suck it. The other one heard its brother and missing its warmth beside it came out to investigate. Pop had an old tin in his tool kit so he brushed it out and poured some of his tea into it, blew it cool and pushed the pig's nose into it. They were too small to be weaned, but with the help of Pop's finger it got some fluid and seemed satisfied. He repeated the process with the second one, then returned them to the hiding place and left them for the return of the mother.
He carried on across the country, unreeling telephone wires, climbing the poles he and his gang had put up previously, and connecting the wires to them. At knock off time he retraced his route, and looked under the bush to see if the Mum had collected her babies. The two were still there, very vocal and hungry, so he reasoned that a hard hearted farmer had just thrown these surplus piglets out to fend for themselves, because no mother animal would leave her babies for so long. He still had some tea in his thermos, and this time they didn't get so much up their noses. They were two smart little animals. He made room in his tool kit and wrapped them up in a bag and put them in the box, and drove home. We had finished tea when he returned, and were intrigued when he walked in with this bundle under his arm. We were thrilled when he put the two little pink pigs down on the floor and they skittled around squealing. Mum was not quite so enthralled, but she put some warm milk into a bottle and with a wick of towelling they could suck it and had a good feed. We found a big cardboard box and they soon were snugly snoring, cosy in some old rags.
The next day Pop unearthed the half tank from the orchard, and with all of us heave- ho-ing, we moved it near the house, put a box sideways in one corner, with hay and the rags in it, and straw in another corner for their toilet. They always used this and never soiled any where else. A bowl for water and their new home was ready. We bought 2 lambs teats, so we could bottle feed them simultaneously. We called them Adolphus and Jemima, and after a week they came to their names. They loved to be picked up and I had a great time dressing them in dolls clothes, putting them in an old doll's pram and pushing them around the garden. They would lie there happily and quite often doze off. In a short time they were eating solids, but they still liked a bottle of milk.
The two pigs grew rapidly and soon could stand on their hind legs to peer over the top of the tank. Jemima could get out but we couldn't imagine how she did it. She would appear at the back door and squeal until Mum gave her a tidbit and returned her to the tank with an extra snack for Adolphus too. After a few days she was long enough in the leg to go up the back stairs and she would follow Mum around the house until she got attention and a snack. Needless to say Mum wasn't all that thrilled with her company.
Whenever there was a Nor'Wester I would have a "bilious attack" and stay home from school until the nausea subsided. I was sitting in the garden by the tank when I heard a commotion, with grunts and squeals and chasing around. Getting up to see what was happening, I saw Jemima rear up on her hind legs and put one foot on the bolt that held the tap in place, and then Adolphus gave her a push with his nose under her tail and she tipped overboard, landing with a grunt on the other side. After a shake, she purposefully trotted off to the back door, while Adolphus sat back and waited for the extra rations. It was time for larger accommodation.
Pop made a superb pigsty down by the creek a good distance from the house, where there was a convenient slope so that the manure from their deck could be hosed down through the slats, run down away from the sty into a holding tank for manure for the garden. They had a good sized living room with an adjoining bedroom full of dry straw and a roof over both. Their deck was large enough for them to chase each other around for exercise and bask in the sun when it was warm. The feed troughs were out there so that anything that was spilt could be hosed down and not encourage flies. There was a gate between the living section and the outdoor deck, so the pigs could be shut in one half or the other to facilitate cleaning. By now they were two gross pigs full of push and playfulness that was enough to knock even Rae, my 14 year old sister, over.
One Saturday when the posh people over the creek were having a garden party with tables set out on the lawn sloping down to the creek, we decided to clean the pig sty, and as the guests were assembled up near the house some distance from the creek we didn't anticipate that our activities would disturb them.
With a family effort and much enthusiasm, the inside gate was not fastened securely, and as we were hauling the straw through the outside gate from the deck, Adolphus pushed out onto the deck, sent my brother John flying, and leapt from the deck, making a mad dash for the creek, and the garden party opposite.
Rae who was tall for her age dashed after the pig, grappled him in the creek, but with the wet skin lost her grip and both of them charged up the slope towards the astonished guests. Rae was gaining slightly, but the gap between the pig and the guests was getting alarmingly small when with a gigantic effort, Rae threw herself forward and grabbed Adolphus's tail. She hung on like crazy as he changed direction and headed back to the creek.
By this time all the family had got into the act. Pop, my brother John, the dog and even the ducks on the creek all set up a great hullabaloo, and as Adolphus and poor Rae being dragged along behind still grimly hanging on, rushed towards them they formed a corral and caught the culprit. Ever after Adolphus had a straight tail, while Jemima's was pert and curly. Rae was the heroine and the neighbours never had another garden party in our time.
There's no mention in the memoirs of what ultimately became of those two pigs, but I have my own theory about this. When I was assembling her memoirs, stories, poems and paintings into the book of her selected works, I thought it best not to go into this theory.
Sunday, May 16, 2010
Today's rant
Friday, May 14, 2010
How and why we came to Ottawa
Wednesday, May 12, 2010
A corner of a foreign field that is forever Holland....
Tuesday, May 11, 2010
Breathing machines
Monday, May 10, 2010
Wendy's progress
Sunday, May 9, 2010
The Pill at 50
Saturday, May 8, 2010
VE Day + 65
Friday, May 7, 2010
Medicine and literature
Medicine and Literature
Passion, compassion, confusion and other emotions in stories about sickness and healing
A complete physician needs insight transcending the knowledge, skills and attitudes that professional training provides. How can this be achieved? Personal experience of illness and suffering, or that of a close family member or a loved one, can do it. It is painful, but it can be a good way to comprehend the complexities of life, and of human nature.
Another way is through the humanities -- a rich source of insight into the human condition and the role of healers. The ethical, moral, and spiritual dimensions of sickness and healing are eloquently displayed in the creative arts -- in music, painting, sculpture, and most of all, in literature -- drama, poetry, fiction. Here I can only skim over the surface, touching without penetrating into the immense variety and richness to be found in literary works. (I mean real literature, not what authors of journal articles commonly call “the medical literature” -- a phrase that is almost always an oxymoron).
Our understanding of the complexities of society and human nature, and our values, come from good literature as well as from our medical experience. Fiction can portray social conditions brilliantly, as Charles Dickens did, for instance in Oliver Twist (1837) Dombey and Son (1848) and Little Dorritt (1855). Good writers often reflect life and the values of their time. HG Wells, in Kipps (1905) and Anne Veronica (1909); JB Priestley, in The Good Companions (1929); Sinclair Lewis, in Babbitt(1922); John Steinbeck, in The Grapes of Wrath (1939); George Orwell, in Down and Out in Paris and London (1933), and The Road to Wigan Pier (1937); and legions of others in many countries have upheld this tradition through all the wars and turbulent events of the 20th century. John Updike’s four books about Harry (“Rabbit”) Angstrom, which dissect the life and values of an “average” American man and his family over the four decades from the 1960s to the 1990s are a good contemporary example.
The workings of the mind, and the whole range of emotions are another fruitful field for novelists -- and for poets. James Joyce's Ulysses (1922) perhaps the greatest novel in the English (or any other) language may be the best textbook ever written about how the mind works. Sylvia Plath and Anne Sexton revealed their tormented souls in their poems. Moran Campbell, a former chairman of the department of medicine at McMaster University, movingly described his bouts with the peaks and troughs of manic-depressive disorder in his autobiography, Not Always on the Level. The 19th Century Scottish poet James Hogg captured the personality of a paranoid psychopath in The Private Memoirs and Confessions of a Justified Sinner (1824), a work of fiction that reads chillingly like fact.
And the works of Shakespeare, of course, are the human mind laid bare, displayed in all its glory, misery, squalor, high spirits, splendour, imaginative sweep. Shakespeare's plays are at the highest pinnacle of a tradition that began with Homer and the Greek tragedians and continues through Samuel Beckett and Arthur Miller. Shakespeare is the undisputed master. If you would understand humanity, heed Hamlet, know Lear, love Rosalind, roister and frolic with Falstaff.
You can learn about the human dimensions of many aspects of disease and medical care from literary accounts:
· How tuberculosis affects people, from Thomas Mann's Magic Mountain (1946) and in a more emotionally wrenching way, from The Rack (1958) by the pseudonymous AE Ellis.
· About the sorrows and pleasures of growing old, from Love in a Time of Cholera (1989) by Gabriel Garcia Marquez.
· About transsexuality, from Melisio, who becomes Mimi, in Isabel Allende's magic realist novel Eva Luna (1988)
· About the impact of mental illness, and the deplorable way it has been treated by sadistic mental hospital staff, from Ken Kesey’s One Flew Over the Cuckoo’s Nest (1962) which was made into an excellent movie.
· About the descent into the self-destructive vortex of alcoholism, from Under the Volcano (1947) by Malcolm Lowry, also made into a good movie.
· What the long, slow death from multiple sclerosis is like from the inside, in Journal of a disappointed man (1964) by W N P Barbellion (which is fact, not fiction).
· And about terminal illness and the inevitability of death, from many accounts, best of all perhaps in Leo Tolstoy's masterly short story The Death of Ivan Ilyich (1884).
Passion, compassion, confusion, and other emotions encountered in medical practice have been described by many creative writers, including some doctors.
In “The Use of Force,” William Carlos Williams, a family doctor, and a lyrical poet and short story writer in depression-era Paterson, New Jersey, described the passion of anger. He absolutely had to look at a little girl's throat because he suspected she had diphtheria. She fought him every step of the way. Her throat was hers! No busybody doctor was going to see it. She knocked his glasses off, kicked, scratched, and bit him. He got really angry. Here, abridged a little, is William Carlos Williams in New Jersey in the 1930s:
... now I had grown furious -- at a child. ...the worst of it was that I too had got beyond reason ... I could have torn the child apart. It was a pleasure to attack her... The damned little brat must be protected against her own idiocy ... in a final unreasoning assault I overpowered the child's neck and jaws... I forced the heavy silver spoon back of her teeth and down her throat till she gagged. And there it was -- both tonsils covered with membrane. She had fought valiantly to keep me from knowing her secret. She had been hiding that sore throat for three days at least and lying to her parents to escape just such an outcome as this. Now truly she was furious. She had been on the defensive before, but now she attacked. Tried to get off her father's lap and fly at me while tears of defeat blinded her eyes.
I’m sure this is a true story. Not long before I first read it, I had slapped a girl about that age, in front of her mother too, because I was fed up with her tantrums. (It was the act in my professional life that I am most deeply ashamed of, but at the time, more than 40 years ago, it felt satisfying and amply justified -- and it worked. Now it would be a criminal offence).
William Carlos Williams's gritty, real-life Doctor Stories are beautifully written accounts of real events and real people, but they are not comfortable reading. They explore the most powerful emotions a doctor can experience in dealing with sickness and suffering, birth and death.
Samuel Shem had just finished his internship year when he wrote The House of God about 20 years ago. Its black humour has been compared to Catch 22 and Mash but it is more obscene, scatological, cruelly callous -- yet also it is compassionate, sometimes very funny, and it can be deeply moving. A few scenes are unforgettable. One is the suicide of an intern who can't take it any more. Well, that's the facile, superficial explanation. The reality is that premonitory signs notwithstanding, no one, including the narrator, Samuel Shem’s alter ego, attempted to intervene as the unfortunate Potts slid into irretrievably profound depression. Another is a brief scene, sketched in just a few lines, of a young married woman who is brought in by the police for a medical examination after being raped. Her husband joins her. In a few lines about their body language, Shem describes how their lives and their loving relationship have changed forever:
“Have you called your husband yet?”
“No... I’m too ashamed,” she said, and she lifted her head up for the first time and looked me in the eyes, and first her eyes were dry cold walls and then, to my relief, they broke apart into wet pieces, and she screamed and screamed out, sob after sob ... after I did the workup for rape I called [her husband]. He’d been worried stiff and was glad she wasn’t dead. He could not know, yet, that part of her had died. [Her husband comes to collect her]... I watched them walk down the long tiled passage. He went to put his arm around her, but with a gesture I knew was disgust at the ruination of her body by a man, she pushed it aside. Separate, they walked out into the savageness...
They never will touch one another again as they did before that night's evil was done. Vignettes like this elevate Shem above the brutal obscenity and ribaldry in the rest of this excellent book.
Doctors are often confused. The Yale surgeon Richard Selzer, a superb writer who ultimately quit surgery to write full-time, described how he once was transported back to the Middle Ages, confused, fearful, possessed by a devil, when on opening an abscess he was confronted by something alive, a hideous face with antennae and eyes staring at him. Reading this makes the hair on the back of my neck bristle. He managed to snare this unearthly beast with a pair of forceps, got it into a bottle of formalin. It was the maggot of a bot-fly, the abscess a common one in cattle, rarely seen in people. It was a deeply disturbing, confusing experience.
Confusion? Pity Emma Bovary’s cuckolded husband, poor Charles Bovary! In medical school he didn't even begin to understand what he was being taught, and when he became a country doctor he could not apply any of it. He lurched and staggered from crisis to crisis, reaching the depths with a major medical disaster, a badly botched diagnosis, at the same time as his marital disaster. He was dazed and constantly bewildered as a medical student:
The curriculum that he read on the bulletin board staggered him. Courses in anatomy, pathology, pharmacy, chemistry, botany, clinical practice, therapeutics, to say nothing of hygiene and materia medica -- names of unfamiliar etymology that were like so many doors leading to solemn shadowy sanctuaries. He understood absolutely nothing of any of it. He listened in vain; he could not grasp it. Even so, he worked. He filled his notebooks, attended every lecture, never missed hospital rounds. In the performance of his daily tasks he was like a mill-horse that treads blindfold in a circle, utterly ignorant of what he is grinding.
I can recall feeling a little like that once or twice when I was a medical student, but not all the time, thank goodness. I can also think of one or two students like Charles Bovary whom I’ve tried in vain to teach...
Confusion and disaster go together in Isabel Allende's account of the tragic death of her daughter, Paula -- brain dead in an episode of acute porphyria, and a long, slow death in deep coma. No one should read Paula as an account of a personal family tragedy due to a medical misadventure, though it is that too. Paula is about much else -- the Allende family, the culture and politics of Chile, lovemaking and childbirth as well as death, the evil of the Pinochet era and the good that overcomes that evil (themes that recur in Isabel Allende's other books) and her own passionate nature and the magic reality of her own life. And the long-term home care of a comatose patient with a tracheostomy... Paula is a celebration of life, and I think it will become a classic.
I am an epidemiologist, so I like books about epidemics. Berton Roueche’s “Annals of Medical Detection” in the New Yorker aroused my interest when I was a medical student, long before I thought of becoming an epidemiologist myself. Two and half thousand years later we puzzle, over Thucydides’ meticulous account of the epidemic that struck the Athenians at the end of the first year of the Peloponnesian War. Now we debate its possible cause, because we can't identify it despite the details Thucydides gives us. Daniel Defoe described in fiction 60 years after the fact the outbreak in 17th century London in Journal of the Plague Year (1722). Samuel Pepys who was in London in the plague year described it too, made it come to life so you can feel the fear and fatalism that infected Londoners even when the plague bacillus did not. Albert Camus's La Peste (1948) is ostensibly about the outbreak of bubonic plague in Oran, Algeria, in 1946; but it is really an allegory of how people become infected with evil ideas and beliefs like fascism. Camus fought in the French Resistance, and knew what he was talking about. Alexander Solzhenitsyn's Cancer Ward is another allegorical novel, a treatise on the cancerous onslaught of Soviet communism on the body and soul of Russia.
There is plenty of humour in fictional works about the doctor's trade. Much of it is satirical, deflating the egos, pricking the pomposity that prevails among too many of us. Shakespeare and Dickens let doctors off lightly considering the professional shortcomings of their times. Not Moliere or Laurence Sterne though: Dr Slop in Tristram Shandy (1759-64) is contemptible as well as a figure of fun. Proust’s description of one of his many doctors, who could discretely palm his fee like a magician, makes me smile ruefully. I had a partner like that when I was in practice... Sir Roderick Glossop, the brain surgeon in P G Wodehouse's novels, is a ludicrous caricature with no medical credibility. George Bernard Shaw was merciless, sceptical about the irrational behaviour of doctors in the first half of the 20th century. In Doctors’ Dilemma, which Shaw called a tragedy, he reserved his most savage criticism of medical customs and mores for the Preface which is salutary reading for everyone in the medical profession who is beginning to suffer from hubris. If Shaw were writing now, would he think we have improved? Have we improved?
It takes a real doctor to display our profession in ways that make me laugh out loud. Has there ever been an account of how to treat a belly-ache that can top A Cure of Serpents? Alberto di Pirajno’s treatment regimen was not only unorthodox, it was highly unethical. But it was very effective! (You must read his book to find out what it was; I won’t reveal it here). Richard Gordon and Colin Douglas, two pseudonymous modern British light novelists can make us laugh out loud too. Gordon's Doctor in the House (1952) and Doctor at Sea (1953) ring hilariously true. I find Doctor at Sea especially satisfying, having been a ship's doctor myself a few times, and had experiences like some of those that Gordon describes.
We have fictional portrayals of noble and good doctors too, like Tertius Lydgate in George Eliot’s Middlemarch. (1871). One “fictional” character from the early 20th century was a real person, the anthropologist and psychiatrist W H R Rivers, who treated shell-shocked soldiers in the Great War. He is brilliantly and sympathetically brought back to life in Pat Barker’s superb Regeneration trilogy.
The honour roll of doctors who deserted their calling to become writers is long and impressive. But some marvellous writers stayed on. It is a deeply satisfying aesthetic pleasure to read them. William Farr's success as a social reformer owes as much to the power of his language as to the facts he displayed in his Annual Reports (in Vital Statistics, part of his job as Compiler of Abstracts to the newly created Office of the Registrar of Births and Deaths in England and Wales). He held that office for over 40 years, from 1839 until near his death in 1883. Not a year went by without his beautifully crafted, rich and rolling phrases tugging at the emotions and the sensibility of his political masters. In his Report in 1874, he addressed the dramatic differences in health levels among English towns:
Take for example the group of 51 districts called healthy… turn to the district of Liverpool. Here it is evident that some exceptional causes of death are in operation in this second city of England. What are these causes? Do they admit of removal? Is this destruction of life to go on indefinitely? Of 10,000 children born alive in Liverpool, 5396 live 5 years, a number that in the healthy districts could be provided by 6554 annual births. This procreation of children to perish so soon, the sufferings of the little victims, the sorrows and expenses of their parents, are as deplorable as they are wasteful. In Liverpool the death of children is so frequent and dreadful that a special system of insurance has been devised to provide them with coffins and burial ceremonies. The mother when she looks at her baby is asked to think of its death, and to provide by insurance not for its clothes but for its shroud and other cerements.
Farr’s contemporaries wrote well too. Read Florence Nightingale's Notes on Hospitals (1863) or her better-known but slight and slim volume of Notes on Nursing (1859). Read John Simon on Filth Diseases (1876) or on English Sanitary Institutions (1890) or go back to 1798 and read Edward Jenner’s Inquiry into the causes and effects of the variolae vaccinae, which describes his experiments with cowpox vaccine -- probably the most important advance in public health sciences of the past thousand years.
William Osler's Principles and Practice of Medicine, published in 1892 was a tour de force the like of which we will never see again, because it is no longer possible for the mind of one person to encompass and write about the entire body of medical knowledge. Osler's textbook is worth reading today, not only for the timeless clinical wisdom (clinical signs haven't changed) but also for Osler’s graceful, elegant prose style.
Alas, as every medical editor knows, such gifts that once were common among learned people are rare nowadays. Far too many authors of papers in contemporary medical journals are like cuttlefish, hiding in their own ink. Pitifully few can communicate an important medical or scientific message in good prose -- the verbal equivalent of a musician with perfect pitch.
Lewis Thomas did it, in sparkling essays, many of them published as “Notes of a Biology Watcher” in the New England Journal of Medicine. Collected in book form they won two Pulitzer Prizes. Peter Medawar did it, and Oliver Sacks can do it too. But the little company of medical writers whose prose is like music or poetry is shrinking. I can count on my fingers the ones who give me pleasure as I read, and whose thoughts I admire.
Tuesday, May 4, 2010
Books on the sciences
Crab apple wants in
Monday, May 3, 2010
Spring time in Ottawa
Our seemingly never-ending spring continues after a momentary interruption, a steamy, oppressive day yesterday. But today was another lovely day of clear warm sunshine with occasional clouds. The profusion of blossom and spring flowers was the best I've ever seen in Ottawa, too lovely to enjoy on my own, so I bundled Wendy into the car and took her for a short spin along Queen Elizabeth Drive around the Rideau Canal to Dow's Lake to enjoy the display of tulips that are at their best now. As well as tulips, there are large beds of daffodils, crab apple blossom, lilac in full bloom, magnolias, apple blossom and others I don't recognize. Even the thousands of yellow dandelions in the grass that most people think are weeds looked splendid I thought, better than lawns that are nothing else but manicured grass treated with pesticides. Our enlightened local government has banned pesticide treatment of lawns. The two photos above are among the selection I took today. I'm tempted to add others but these are enough to show what the city looks like today. Wendy thoroughly enjoyed her day out, so it was well worth it. Incidentally, the office tower visible above the tree tops and the bed of orange-colored tulips is where Rebecca works. I suppose she was hard at work in there while Wendy and I were admiring all the flowers and blossoms.